Jayne C. Gershkowitz, Chief Patient Advocate
Jayne C. Gershkowitz

Jayne C. Gershkowitz

Chief Patient Advocate


Jayne C. Gershkowitz joined Amicus in June 2006 and currently serves as Chief Patient Advocate. She founded Amicus’ Patient Advisory Boards program and manages Healing Beyond Disease™. She is a long-time patient advocacy professional with expertise in the LSD and broader rare disease community. Previously, Ms. Gershkowitz served as Executive Director at the National Tay-Sachs & Allied Diseases (NTSAD) Association. Her earlier career experience encompasses newspaper journalism; corporate and non-profit marketing communications; and social services.

Ms. Gershkowitz is active in several rare disease and biotech organizations as well as industry, association and nonprofit boards and committees, including: founding chair of BioNJ’s Patient Advocacy Committee; co-founder and board member of Professional Patient Advocates in Life Sciences (PPALS); and former vice-chair of the Board of Directors of the National Organization for Rare Disorders (NORD). She is also part of the Board of Trustees of the Healthcare Institute of NJ (HINJ); BIO’s Government Relations and Rare Disease specialty committees; Together Strong; and the Corporate Alliance of Global Genes. Ms. Gershkowitz was a PharmaVOICE 100 honoree in 2018 and “Heart of BioNJ” Award recipient in 2019.

Ms. Gershkowitz earned a degree in journalism from the Newhouse School of Public Communications at Syracuse University and studied business administration at the Radcliffe Graduate Seminars Program.

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